Terry and Jacque Capistrant have lived in St. Paul most of their lives. Jacque attended Derham Hall and St. Catherine’s college and Colorado College. She worked at the University of Minnesota libraries and studied interior design. After raising three sons, Jacque put her training in art to use as a freelance interior designer and helping manage a woman’s apparel store.
Terry went to Cretin High School and then did his undergraduate work, medical school and post grad (Neurology) training at the University of Minnesota. Terry served as an assistant professor of neurology for two years at St. Paul Ramsey hospital before entering private practice for 29 years. He helped found the Neurological Associates of St. Paul.
Terry developed the tell-tale signs of Parkinson’s Disease in 1995 and by 1998 it progressed to the point where he retired. He was asked by HealthEast administration to help form a Center for Parkinson’s disease in 2005. With the help of Jacque as caregiver along with the good advice of the doctors, Terry has continued to golf, hunt, and lead a “near normal” life. One fact that seemed to define success in Terry’s Parkinson’s journey was exercise and involvement in a variety movements.
The Capistrants serve on the Patient Advisory Board of the National Parkinson Foundation Minnesota.
Betty Strom was never her Parkinson’s. As the disease made her world ever smaller, her courage and soul expanded. A few days before her death in 2011 at age 80, she begged to join her neighbors in a field trip to Underwater World. That was my mom.
My Parkinson's story began when my mom, Sharon, was diagnosed with Parkinson's disease when I was in high school.
“You have Parkinson’s.” Those are 3 words I heard more than ten years ago – three words that were not in my plan, and I am a planner. I plan the plan to plan.