Why Parkinson friendly Community?

  • We believe there are over 1 million Americans with Parkinson’s disease and it is expected to double by 2030, yet there is not a national registry to calculate exact number of people living with Parkinson’s. In the 2016 Senate session, the Advancing Research for Neurological Diseases Act (S.849) will be introduced to develop a registry. Please ask your Senator their support. The Parkinson’s Action Network has created an easy way to email them within a few minutes!
  • Currently there is no cure for PD
  • 60,000 new cases are diagnosed each year.
  • PD is the second most common neurodegenerative disease after Alzheimer’s and is the 14th leading cause of death in the United States.
  • In Minnesota, the population of residents 65 and older is currently the fastest growing age group increasing from 12 percent to 24 percent of the total state population by 2030. This older population will be markedly affected by Parkinson’s disease, a progressive neurodegenerative disorder which is diagnosed in one in 100 people over the age of 60.
  • One study ranked Minnesota third in the nation in prevalence of Parkinson’s disease (North Dakota first, South Dakota second).
  • Although common in other chronic diseases, research suggests that depression and anxiety are even more common in PD. It is estimated that at least 50 percent of those diagnosed with PD will experience some form of depression during their illness, and up to 40 percent will experience an anxiety disorder.

How does Minnesota respond?

  • Significantly increase the understanding of PD and shine a light on the critical need for community support
  • Build relationships and partnerships in communities;
    • Police, Firefighters, First Responders
    • Tips for employers
    • Fitness instructors
    • Parks and Recreation
  • Provide Parkinson’s support groups with resources and education
  • Educate and support care providers in clinics, hospitals, assisted living and nursing care facilities along with fitness trainers through training from Struthers Parkinson’s Center, the Center of Excellence in Golden Valley, MN.

What is a Parkinson friendly Community?

NPFM envisions a future where people living with Parkinson’s disease are actively enjoying life with their friends, families, neighbors, children and grandchildren with community support for as long as possible. Communities will embrace those living with Parkinson’s disease through increased understanding and acceptance.

Initial Impact

  • Exercise classes help with stability and body awareness. “It’s a social thing, too,” she said. “All the people in the group have Parkinson’s and they enjoy being together.”
  • “Because this is a long-term, expensive illness, we just want to get in the community and let people know there’s resources,” said Ann Garrity of the National Parkinson Foundation.
  • “I’ve heard ‘I started throwing a football again.’ ‘I can take a bath alone.’ It’s motivating for the patient,” she said. How does your community become Parkinson friendly?
    • West Central Tribune Willmar, MN. article
  • “We started with a group of eight Parkinson’s patients [in 2007] and it has now grown to three classes of over 30 participants,” Roske said.
    • Echo Press Alexandria, MN article

How does your community become Parkinson friendly?