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Parkinson’s Support Grants

Here at NPFM we are very excited to offer three great opportunities for Parkinson’s patients and their caregivers. We truly believe that providing help and support for those living with Parkinson’s disease is the best way to raise awareness. After creating our first support grant and helping others, NPFM decided to evaluate the most prominent needs of people living with Parkinson’s and their families.

After doing our research and having conversations with people living with Parkinson’s, we added two more support grants to our program. Today, we have three support grants that each have a different focus. The first is a caregiver respite care grant, the second is a help-at-home grant, and the third is an exercise grant.

 

Wondering what each grant is all about? Here are some short descriptions:

— Caregiver respite care grant: This grant is for the live-in caregiver of a person with Parkinson’s or another related movement disorder living in Minnesota or one of its bordering U.S. states (North Dakota, South Dakota, Iowa and Wisconsin), allowing the caregiver a period of respite, or relief, from everyday responsibilities.

— Help-at-home grant: This grant is for a person with Parkinson’s or another related movement disorder living in Minnesota or one of its bordering U.S. states (North Dakota, South Dakota, Iowa and Wisconsin) to assist with general maintenance of a residential dwelling.

— Exercise grant: This grant is for a person with Parkinson’s or another related movement disorder living in Minnesota or one of its bordering U.S. states (North Dakota, South Dakota, Iowa and Wisconsin) to help the person with Parkinson’s get active through exercise programs.

 

Everyone at NPFM is continuously fundraising in order to support these grants and help as many people as possible. And the best part? We know that we can help.

“[The respite grant] was a gift for both [my husband] and I…I plan to continue encouraging caregivers to apply for the PAM grants that they can use for in-home care, adult day programs, or out-of home care. The respite break the grants provide are needed and deserved by caregivers.”

- Lorna Breiter

” We received the grant so that [my husband] could use the respite care services in The Kenwood Retirement Community…We both came home refreshed and told everyone about this terrific service. THANK YOU!”

- Vivian Jenkins Nelsen

“It is difficult to find the words to express the value to me of respite funding granted by the Parkinson Association of Minnesota…The freedom to hire a caregiver for the times I would like to attend meetings or meet with friends has given me flexibility i would not otherwise had…I would appreciate an opportunity to apply again.”

- Barbara Breckenridge

“We have the Parkinson Association to thank for the kind of support that enables mom and me to hope and plan…Thank you Parkinson Association of Minnesota for understanding how to best help Mom and me address our most pressing need. You’re great!”

- Don Piche

 

All of this great feedback from our grant recipients give us all of the motivation we need to continue fundraising and helping people with Parkinson’s. Here at NPFM we believe in support and we will do whatever it takes to be Parkinson’s Warriors.

Interested in receiving one of our grants for you or a loved one?

Individuals/families are welcome to apply for ONE of the three grants within a 12-month period. Applications will be accepted on a rolling basis until funds are exhausted, and will be handled in the order they are received by the NPFM office.

NPFM looks forward to working with the Parkinson’s community in issuing these grants. For more information, call the NPFM office at 763.545.1272 or e-mail barb@parkinsonmn.org.

First Hand Help

Recently diagnosed with Parkinsons disease? Living with Parkinson’s disease and looking to connect with someone else living with the disease? We are here to help!

First Hand Help was created to help people living with Parkinson’s make the connection with someone on the same journey.

Our First Hand Help Program offers a personal connection to someone fighting the same fight. We will try was developed by the People with Parkinson’s Advisory Board of the National Parkinson Foundation Minnesota. This group, comprised completely of those living with PD serves a single purpose: to improve the lives of people living with PD through research, education, treatment and outreach. This group realizes the importance of connecting with others living with PD, and wants to help establish a new outreach program.

The First Hand Help program offers a personal connection to someone fighting the same fight. We will try to personally match you with an individual who may live in your area and share similar interests. You can feel safe sharing your story, struggles and triumphs with someone who will listen, share their own experiences and provide resources.
Common questions:
- Do I have to be newly diagnosed to participate?
No, the program is open to anyone living with Parkinson’s disease.
- Is this confidential?
Yes. Your information will not be shared with any third-party affiliations.
- Is this free?
Yes, the program is provided at no cost, other than your time and perhaps a friendly cup of coffee.
- How do I get started?
Visit the NPFM website www.parkinsonmn.org
Click on Get Support
Click on First Hand Help
Fill out the online Request Form
Or call 763-545-1272 or email info@parkinsonmn.org

35W Bridge Lighting Video

In honor of Parkinson’s Awareness Month, the 35W bridge was lit up in Parkinson’s blue. Our Past President, Paul Blom interviewed Michael Molloy, who is living with Parkinson’s Disease, about his experiences and his advice for other individuals on the same journey. He also incorporated some information from various health professionals with extensive knowledge of PD research and care.

Combined with the beautiful visuals of the bridge, this short video is meant to increase awareness of Parkinson’s Disease and all that you can do to help. Be sure to check out the Moving Day® Twin Cities website, here.

 

Live Stream of 35W Bridge

Join us Friday night for the lighting of the 35W Bridge in honor of Parkinson’s Awareness Month! If you weren’t able to spot the bridge on your way home, then you have come to the right place. Enjoy this beautiful structure dressed up in Parkinson’s Awareness blue and learn more about our programs by exploring our website!

#BuyDavesTies

It’s that time of year again!

NPFM is excited for its annual partnership with KARE 11’s Dave Schwartz for ‪#‎BuyDavesTies‬, a great way to support NPFM and look good doing it.

So how does it work? Visit our eBay page to bid on the ties that Dave models. Win and you can look stylish while helping out the Parkinson’s community!  Be sure to keep an eye on our Facebook page for updates on the ties, auction deadlines and much more.
Click here for the NPFM eBay page and start bidding!

April is Parkinson’s Awareness Month

Happy Parkinson’s Awareness Month! The 35W bridge will be lit up in a beautiful blue on April 17th in support of Parkinson’s Awareness, so be sure to take a look on your commute home. If you won’t be able to stop by, find a high definition livestream right here on the NPFM website!
Here at NPFM we focus on spreading awareness all year long, but the month of April is a great time to get involved and learn more about Parkinson’s Disease. Whether you are looking to participate in upcoming events or simply interested in learning more about our community, be sure to check out all of the great info that we have to share.
Community 
Read stories from Minnesota Parkinson’s patients, family members, friends, and professionals.  Learn how NPFM is working to create Parkinson’s-friendly communities across Minnesota and find resources from friends of Parkinson’s across the state.
Get Support
No matter what stage you are at in your Parkinson’s journey, NPF Minnesota is here to support your family in your Parkinson’s journey. We offer dedicated support resource for patients and caregivers, including information on:
Medical Corner
Learn more from local Parkinson’s disease experts about Deep Brain stimulation and current research being conducted. Meet our team of Medical Advisors and ask the experts any questions you may be having.
Simply wondering about the basics? Be sure to take a look at our fact sheet for a more generalized overview of Parkinson’s disease.
How to Help 
NPFM is working to make sure all people with Parkinson’s and their families can live well. We work every day to improve the lives of Parkinson’s care through research, education and outreach. You can support our work by making a donationvolunteering, or by joining us a corporate sponsor. Together, we will improve care for Parkinson’s and enhance the lives of people affected by Parkinson’s disease in the Upper Midwest.
News & Events

Stay up-to-date on the latest Parkinson’s news from local sources and the national foundation. Moving Day® 2015 is approaching fast and we encourage you to learn more, here: www.movingdaytwincities.org

12 Days of NPFM

Thanks Minnesota for making 2014 a great year for the National Parkinson Foundation Minnesota. Our reach has been far and wide, but here are a few highlights of our events and outreach throughout the past year.

 

 

 

 

 

 

 

 

DAY TWELVE
“Living with Parkinson’s” TPT production

Working with TPT, we were able to produce “Living with Parkinson’s”, a half-hour show dedicated to PD, from diagnosis to living with the disease. The show is available online, including segment breaks relevant to specific topics. If you are interested in receiving a DVD copy of the show please contact our office at info@parkinsonmn.org or call 763.545.1272.

And keep an eye out next year as we introduce a special medical feature each month in relation to each of the topics covered in “Living with Parkinson’s”.

DAY ELEVEN
Education Materials

In addition to guest speakers, grants and support group assistance, NPFM also offers materials for people living with Parkinson’s to learn more about the disease and the many facets they may encounter during the journey.

The popular ‘Rainbow Books’, the widely respected  ten-volume Parkinson’s education series focused on issues critical to patients. Patients, families and professionals alike consider these books essential for education about PD, ranging from introductory information to more in-depth material that can be kept and reread many times over.

Interested in getting your own copies of the series? Want a book just on medications, sleep or caregiving? Email us at info@parkinsonmn.org or call 763.545.1272 to request your FREE issues.

DAY TEN
Support Group Materials

NPFM is fortunate to assist those who assist others by providing reference materials for support groups.

This year support groups around the state received three books and a DVD with the “Living with Parkinson’s” show from TPT. The materials can be used as a discussion topic for support group meetings or loaned out to group members.

DAY NINE
Give to the Max Day

An annual day of online giving in Minnesota, the 2014 Give to the Max Day was a great success. Thanks to the generosity of the PD community in the state NPFM was able to raise nearly $9,000, almost doubling the total from the previous year.

The day gave individuals an opportunity to donate to our Parkinson-Friendly Communities initiative, support grants or the general fund.

Thank you to everyone who donated, and to our People with Parkinson’s Advisory Board who served as the face (literally) of the marketing materials.

DAY EIGHT
Educational Speakers

NPFM is proud to offer educational speakers throughout the year. In addition to Evenings Out, we partner with local organizations that work directly with the Parkinson’s community to host informational sessions around the state.

Additionally, members of the Clinical Advisory Board (medical professionals) and the People with Parkinson’s Advisory Committee are available for speaking/educational events. Interested in having someone speak to your group? Contact us at info@parkinsonmn.org.

DAY SEVEN
Dance to Break the Record

Held this year at the Ridgedale YMCA in Minnetonka, Dance to Break the Record offered an opportunity for the Parkinson’s community to come together and get active through dance while challenging chapters from around the country to beat our record of most people dancing for Parkinson’s at one time.

In addition to the record breaking dance, the day also offered tango lessons, free dance and a prize raffle.

DAY SIX
Struthers Parkinson’s Center

The local National Parkinson Foundation Center of Excellence, NPFM works closely with Struthers by providing funding for education and other outreach programs across the state. This year, in addition to general education, Struthers offered a successful exercise training program for group exercise leaders. This training was designed to educate group leaders about how to work with PD patients in exercise programs, helping to maximize exercise effectiveness. This program is just one example of the importance of exercise, and how Struthers works to help improve the lives of those living with PD.

Thank you to Struthers for all that you do!

DAY FIVE
Evening Out for Parkinson’s

NPFM is proud to host two Evening Out for Parkinson’s each year. The event provides a Parkinson’s-friendly dinner and entertainment for the Parkinson’s community.  Often, Parkinson’s families may be isolated because of the disease and its visible symptoms.  The Evening Out for Parkinson’s is an opportunity for Parkinson’s families to enjoy a celebration without fear or hesitation.

DAY FOUR
Parkinson-Friendly Communities

Through a generous grant from the Otto Bremer Foundation, NPFM has been able to work with cities around the state to form Parkinson-Friendly Communities (PFC). Alexandria, Fargo/Moorhead, Willmar, St. Cloud and Mankato have all been touched by NPFM through educational and exercise initiatives, engaging not only people living with PD, but the community as a whole.

For a look at where we’ve been and what we’ve done, read the following article.

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DAY THREE
Golf Tournament

The annual golf tournament was held this year on June 30 at the Minnesota Valley Country Club. This year through the generosity of sponsors, donors and participants we were able to raise $75,000 to support the Parkinson Support Grant Program.

Since its inception in 2006, the annual event has raised over $250,000 for the support grant program.

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DAY TWO
Parkinson Support Grant Program

NPFM supports those living with and affected by Parkinson’s with its Parkinson Support Grant Program.

Originally conceived as a caregiver respite grant program, this year we expanded our reach by adding help-at-home and exercise initiatives. Individuals/families are welcome to apply for one of the three grants worth $500 every 12 months.

For more information, check out the brochure below or visit our website.

Support Grant Brochure

DAY ONE
Moving Day® Walk
The 2014 Moving Day® walk was a success, with over $231,000 raised from nearly 2,500 donors.

A day to unite families, friends and communities both large and small in the fight against Parkinson’s disease, the event offers unique exercise and educational areas in addition to the traditional walk. The walk has continued to grow every year since its inception and we hope that 2015 is no different. Team sign-up has already started! Learn more and join us now in our mission to help those affected by PD.

Medtronic billboard

NPFM Accepts #PieItForward Challenge

 

Over 25,000 people are living with Parkinson’s in the state of Minnesota, the third-highest per-capita total in the United States.

Working alongside the National Parkinson Foundation, NPF Minnesota decided to help raise awareness and funds for Parkinson’s by participating in the #pieitforward campaign.

To kick off the campaign, executive director David Wheeler and past president Paul Blom accepted the challenge. Watch their video for inspiration and to see who they challenged, then join the effort by following the instructions below!

Want to do Whatever It Takes to Beat Parkinson’s?
To show your support for Parkinson’s? Here are the few easy steps.

1. All those challenged must take a whipped cream pie to the face.

2. When you complete your challenge, the person who challenged you must then donate to the cause. You may also challenge more individuals to participate and help spread awareness!

3. Be sure to share your videos on your favorite social media networks using #PieItForward – then send us the link to your video!

Donations can be made directly to NPFM to help our mission to raise awareness and provide outreach opportunities in the state of Minnesota. Please specify your donation as #pieitforward challenge when submitting.
DONATE NOW

Donations can also be made to our national office.

We look forward to seeing your best videos for a great cause, Minnesota!

Leadership candidates sought for NPFM

During its February meeting, the NFPM Board of Directors formed a search committee and charged it with conducting a search for a leader to help the organization continue to grow and enhance the lives of people living with Parkinson’s disease. Leading the search is Kent Eklund, vice president of the Board. Serving on the committee are Barb Green, Connie Perpich and Paul Blom.

Please share this opportunity with friends, relatives and colleagues. The application deadline is March 15, 2014. More information is below.

 

POSITION ANNOUNCEMENT
EXECUTIVE DIRECTOR
NATIONAL PARKINSON FOUNDATION MINNESOTA

The Board of Directions of the National Parkinson Foundation Minnesota (NPFM) announces the opening of its executive director position. NPFM is a chapter affiliate of the National Parkinson Foundation and is on its way to becoming the most impressive and dynamic nonprofit organization in the region to positively impact the lives of families living with Parkinson’s disease. Our work includes creating Parkinson’s-friendly communities, a family grant program, and backing care improvement, outreach, education and support initiatives across the region. NPFM increases understanding of Parkinson’s disease and also shines light on the critical need for community support. NPFM volunteers, staff and community love being involved because we produce tangible results, express gratitude and create a fun atmosphere while building Parkinson’s-friendly communities.

The successful candidate is a strong yet collaborative and inspiring leader who has demonstrated success working with an active volunteer Board of Directors and small staff. The candidate is organized, goal-oriented and able to multi-task without neglecting management duties. The ideal candidate has demonstrated an ability to develop community partnership and is comfortable representing the organization with the Parkinson’s community, health care organizations, corporations, philanthropists and other stakeholders. The ideal candidate has experience creating and implementing a targeted case for funding. The candidate is a generalist in the truest sense of the word, doing everything from developing overall organizational strategy to budgeting, to marketing, to serving on various committees and leading advisory boards to implement desired outcomes. Finally, the candidate demonstrates exceptional communication, time management and accounting skills.

The role requires a history of success in leading nonprofit organizations or related experience, ability to work occasional evening and weekend hours and a Bachelor’s degree at minimum.

Interested candidates should forward a letter of introduction and a resume to NPFM Search Committee, 5905 Golden Valley Road, Suite 237, Golden Valley, MN 55422 or to info@parkinsonmn.org. The deadline for submission is March 15, 2014.

 

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