Archive for the "Parkinson’s Friendly Events" Category

Willmar Pedal and Roll

Willmar Pedal and RollThe National Parkinson Foundation Minnesota (NPFM) is excited to work with Pedal and Roll for Parkinson’s for a two-day event in Willmar on August 21-22.

The event, hosted as a part of the NPFM Parkinson-Friendly Communities initiative through a grant from the Otto Bremer Foundation, will take place in the community on the evening of Thursday, August 21 and morning of Friday, August 22.

Thursday evening, Pedal and Roll founder and Parkinson patient Liz Ogren will speak to the community at Club Bethesda from 6:30-8 p.m. about living with a diagnosis and the benefits of exercise.

On Friday morning, the community will have an opportunity to put Liz’s exercise ideas into motion with a Pedal and Roll event at Robbins Island. From 10 a.m.-noon participants can ride their bikes around the island, or use one of the special adaptive bikes provided by Pedal and Roll to get out and get active. Participants are encouraged to bring their own helmets, and light snacks and beverages will be provided.

Informational poster: Willmar Pedal and Roll

***www.parkinsonmn.org***

Night Out for Parkinson’s – East

GOLDEN VALLEY, Minn. – The National Parkinson Foundation Minnesota held its annual Night Out for Parkinson’s on Thursday evening at the Mendakota Country Club.

Over 70 people turned out for an evening that included dinner, silent auction and a chance to catch up with those involved in the Parkinson community. Dr. Okeanis Vaou served as the guest speaker for the evening, discussing pain associated with Parkinson’s and how to cope.

We would like to thank those who attended, along with our silent auction and raffle winners.

Be sure to check www.parkinsonmn.org for updates on all of our upcoming events.

 

 

 

 

 

2014 Night Out for Parkinson's East

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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The National Parkinson Foundation Minnesota (NPFM) is the Minnesota chapter of the National Parkinson Foundation (NPF). We are a local nonprofit raising awareness and funds for the Upper Midwest Parkinson’s community.  As a strong organization with a rich history, we are growing to enhance our leadership and community relationships, enable Parkinson’s providers to deliver more services and therapies, and to empower patients and families with Parkinson’s information and resources.

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St. Paul offers Parkinson’s-friendly class at Phalen Rec

Congratulations to the City of St. Paul Park and Rec Department and HealthEast Capistrant Center for working together to bring Parkinson’s-friendly classes to the Park and Rec calendar.

Starting July 9 the city is offering a Parkinson’s-friendly Tai Chi Chih class Wednesday mornings at Phalen Rec Center. More information and registration details are found here.

NPFM is working to highlight Parkinson’s-friendly exercise opportunities across the region. Do you have a favorite Parkinson’s-friendly exercise we should check out? Let us know at info@parkinsonmn.org.

People with Parkinson’s tell us– and research proves–movement is medicine. Movement is key to treating symptoms of Parkinson’s disease. NPFM’s Persons with Parkinson’s Advisory Board is working to identify Parkinson’s-friendly exercise classes and programs throughout the state. The list is growing!

Note: These programs are listed for information sharing only. Please consult your movement disorders specialist and care team before beginning any exercise program. Although the programs below have been identified as “Parkinson’s friendly” by people with Parkinson’s, they are not certified or approved by NPFM.

Annual Walk is more than just a walk for the Austins

My father was diagnosed with Parkinson’s 10 years ago. He was 54. The disease has had an impact on our entire family.

Nine years ago we participated in our first Parkinson’s walk. After five years of walking, we knew we could do more.

With the support of family and friends we organized a silent auction fundraiser. The owner of our local restaurant, The Station, is very helpful and offers us a great price on the buffet we offer as part of the event.

Many local businesses have responded to our donation requests over the years and friends and family add baskets to the mix. Each year we make more money than the year before.  A highlight this year was the addition of a live auction that went over very well. We also had a bowling benefit at the local bowling alley.

Kids are also part of the event. We have a PLINKO- type game with gifts donated by a friend with connections with the movie industry.

In the past we have had entertainment at the auction and a party bus with games and stopovers at local bars. We are continually attempting to reach more people. Each year we try something new to add to the fun.

People often ask about planning. I start thinking about next year’s event as soon as the current year’s event is completed.  I start organizing in the fall and our small group of five women meets in January to go over our plans. Another local family affected by Parkinson’s has joined in and helped with the live auction this year. It takes a little pushing on my part to get us moving, but each event has been a success.

We have raised more than $30,000 for NPFM in the four years we have held our benefit. Our goal is to raise awareness in our community and raise funds for Parkinson’s.

As the slogan says, we’re doing whatever it takes to beat Parkinson’s.

Claire Austin
Team Captain
Stomping Out Parkinson’s

Online auction, public television premiere, special donors and more highlight Parkinson’s Awareness Month activities; You’re invited!

Parkinson’s awareness month is the perfect time to help friends, family, neighbors, work colleagues and others learn more about what it takes to live well with Parkinson’s disease.  And NPFM is here to help. 

Living with Parkinson’s premieres April 22 at the Galleria Edina. People with Parkinson’s and their families, health care providers, volunteers and others are featured throughout this 26-minute video produced by NPFM in cooperation with Twin Cities Public Television and the Capistrant Parkinson’s Foundation.  The premiere is 5 to 7 p.m. at Barnes and Noble located at the east end of the Galleria Edina. Refreshments will be served. Invite your friends and family to join you for this special evening. RSVP to help us plan accordingly. TPT describes the documentary-style video saying that although the phrase “you have Parkinson’s” is difficult to hear, “for many Minnesotans, this diagnosis leads to a new stage of life with valued relationships and personal growth.”

Following the premiere, author Susan Gangsei will be signing her new book, Stuck with it, Not in It…Redefining Life with Parkinson’s Disease. The book features stories of hope from people throughout the Parkinson’s community. This is Gangsei’s second book. Her first, The Light in the Middle of the Tunnel, features personal stories about Gangsei’s experiences as a care partner.

Parkinson’s Awareness Month is also the time of year when NPFM celebrates the Parkinson’s community and thanks those who do whatever it takes to beat Parkinson’s.  We started the month at the City of Minneapolis City Council meeting where the Council read a resolution proclaiming April as Parkinson’s Awareness Month.  The resolution was followed by our annual Evening Out for Parkinson’s West, an evening of good food, music, a silent auction and medical update. Once again people with Parkinson’s, family and friends didn’t let a Minnesota snow storm stop them from enjoying a beautiful evening.

KARE11’s Dave Schwartz is taking advantage of Parkinson’s Awareness Month to raise awareness and funds for NPFM with Buy Dave’s Ties. Schwartz and his family have been personally affected by Parkinson’s and in honor of his grandmother, Sylvia, he will be wearing a new Hammer-Made silk tie during every weekend broadcast through April 19. Each tie is being auctioned off on eBay and NPFM receives all proceeds.  Follow the auction on the NPFM Facebook page or search Buy Dave’s Ties on eBay. And thank you to Hammer Made for donating the gorgeous ties again this year.

Next week, April 15 to be exact, the 35W St. Anthony Falls Bridge will glow blue in honor of Parkinson’s Awareness Month. You’ll see three shades of NPF blue and Medtronic’s blue on the bridge.  NPFM is excited to have our partner Medtronic as part of this event. While bridge is shining, NPFM is celebrating its Top Parkinson’s Philanthropists. These regular, yet very special people will be highlighted in our social media telling their own story about why they raise money for Parkinson’s and why they chose to give to NPFM. Their stories are your stories.  We believe they will help make communities more Parkinson-friendly.  Again, watch our Facebook page for details.

And finally, we end our awareness month activities with our biggest fund raising and fun-filled event of the year, Moving Day Twin Cities, our annual walk for Parkinson’s. Find out more here, register your team and join us May 3 at beautiful Hilde Park in Plymouth.

NPFM staff and volunteers have been working to celebrate Parkinson’s Awareness Month and take advantage of the opportunity to draw attention to Parkinson’s. What do you do to help create more awareness about Parkinson’s in our communities? Please share your ideas.

-Eileen Smith

NPFM Board President

 

Parkinson’s and DBS: Fargo hosts seminar

Our friends in the Parkinson’s-Friendly Community of Fargo, N.D., recently hosted a seminar for local residents to learn more about the Deep Brain Stimulation procedure and how it may help some people with Parkinson’s. Here’s the seminar in three components:

Presentation Part 1

Presentation Part 2

Presentation Part 3

Register now for Fargo-Moorhead Parkinson’s and DBS seminar

Refuse to Surrender to the symptoms of Parkinson’s disease is a seminar co-sponsored sponsored by Medtronic, Tanya Harlow, M.D., movement disorders neurologist, and Adam W. Jackson, M.D., Ph.D, neurosurgeon, with Sanford Brain & Spine Center, Sanford Health, Fargo.

This free seminar is for people with Parkinson’s disease and their care partneres.
It will help you understand:

  • Medtronic DBS Therapy, an FDA-approved treatment for the symptoms of advanced Parkinson’s disease
  • Risks and benefits of Medtronic DBS Therapy

Registration begins at 5:30 p.m., followed by the program at 6 p.m. Although the seminar is free, we’d like to know you are coming. RSVP to info@parkinsonmn.org or call 763-545-1272.

For more information on DBS Therapy, visit www.refusetosurrender.com. For complete safety information about Medtronic DBS Therapy, visit Medtronicdbs.com.

Throw out a first pitch, sing Take Me Out to the Ballgame

Parkinson’s Day at the Ballpark is almost here and this year we will have more fun than ever before. Tickets remain for the Aug. 18 event at Target Field. Join the fun by purchasing your ticket here.

One lucky NPFM ticket holder will be invited to go onto the field before the game and throw a first pitch. New this year is the chance to sing the chorus of Take Me Out To The Ballgame during the 7th inning stretch. No experience necessary and everyone is our group is invited to join in the fun.

NPFM’s version of BINGO™ will be back, along with fabulous prizes and Parkinson’s information for attendees. A big thank you to Parkinson’s disease medicine partners UCB and USWorld Meds for sponsoring this fun day for the Parkinson’s community and allowing NPFM to sell tickets at discount.

Don’t let the Twins less-than-fabulous season keep you away from beautiful Target Field and enjoying a Sunday afternoon with your NPFM friends. We have wheelchair accessible seats, and the Twins have wheelchairs and staff members to help guests get from the curbside drop off to NPFM’s seats. If you would like more details on getting around Target Field, please contact and we’d be happy to help. For planning purposes for those who are not dropped off curbside, our tickets are closest to Gate 6 although you may enter at any gate. Gate 6 is also where the light rail train drops off riders.

Please join us in generating Parkinson’s awareness and enjoying a Sunday afternoon of fun with a great Minnesota charity. Once again, here are the details:

Sunday, Aug. 18

Gametime: 1:10 p.m.

Versus the Chicago White Sox

Our seats are in the Skyline Deck, near the Legends Club with a beautiful view of downtown Minneapolis.

First 5,000 fans under at 14 receive a Twins back-to-school pencil case.