Archive for the "NPFM News" Category

Parkinson Friendly Community: Willmar

The National Parkinson Foundation, through a generous grant from the Otto Bremmer Foundation, spent Thursday and Friday in Willmar encouraging the community to get active while learning about PD as a part of the Parkinson Friendly Community initiative.

A Thursday evening presentation about the benefits of exercise preceded a two-hour pedaling and Nordic walking event at Robbins Island. More than 20 individuals from the greater Willmar community turned out to get active and enjoy a beautiful Friday.

Thanks to Club Bethesda, Liz Ogren and Pedal and Roll and the Otto Bremmer Foundation for making the two-day event possible.

Star Tribune: Parkinson’s and depression

JackieNPFM was thrilled to connect Star Tribune reporter Jeremy Olson to local experts for today’s story about  Parkinson’s and depression.  Jackie Christensen, Liz Ogren, Dr. Martha Nance and Dr. Steven Stein are generous NPFM volunteers, helping people with PD live well.

While many people likely recognize tremors and difficulty walking as part of the illness, depression is one of many non-motor symptoms. Don’t wait to access the many education and support resources available locally. More than 25,000 Minnesotans live with Parkinson’s disease (PD), the third highest incidence per capita in the country. If you don’t find what you need on our website, please contact our office. We are here to help.

 

 

NPFM Clinical Advisory Board Statement Regarding Robin Williams

A message from Dr. Martha Nance, chair of the Clinical Advisory Board for the National Parkinson Foundation of Minnesota:

The Minnesota Parkinson’s disease medical community, like the rest if the country, is grieving the recent death of Robin Williams. Even more, we are saddened by the tragic manner if his death. Depression is common in people with Parkinson’s disease, but like many symptoms of the disease, it is often quite treatable.

Many people lead a rewarding and active life for many years after a diagnosis of Parkinson’s disease.  If you think you might have Parkinson’s disease, make an appointment with a Parkinson’s specialist to get an accurate diagnosis and appropriate treatment: Parkinson Disease Specialists.

And if you are depressed, uncertain, lost, or panicky after a diagnosis of Parkinson’s, or if the recent revelation about Robin Williams has sent you into a tailspin, call your primary care physician, your neurologist, or a mental health specialist for help. Let us hope that Mr. Williams’ tragic death will help others to live better.

Dr. Martha Nance, chair of the NPFM Clinical Advisory Board and medical director of the Struthers Parkinson's Center in Golden Valley, a NPF Center of Excellence.

Dr. Martha Nance, chair of the NPFM Clinical Advisory Board and medical director of the Struthers Parkinson’s Center in Golden Valley, a NPF Center of Excellence.

Willmar Pedal and Roll

Willmar Pedal and RollThe National Parkinson Foundation Minnesota (NPFM) is excited to work with Pedal and Roll for Parkinson’s for a two-day event in Willmar on August 21-22.

The event, hosted as a part of the NPFM Parkinson-Friendly Communities initiative through a grant from the Otto Bremer Foundation, will take place in the community on the evening of Thursday, August 21 and morning of Friday, August 22.

Thursday evening, Pedal and Roll founder and Parkinson patient Liz Ogren will speak to the community at Club Bethesda from 6:30-8 p.m. about living with a diagnosis and the benefits of exercise.

On Friday morning, the community will have an opportunity to put Liz’s exercise ideas into motion with a Pedal and Roll event at Robbins Island. From 10 a.m.-noon participants can ride their bikes around the island, or use one of the special adaptive bikes provided by Pedal and Roll to get out and get active. Participants are encouraged to bring their own helmets, and light snacks and beverages will be provided.

Informational poster: Willmar Pedal and Roll

***www.parkinsonmn.org***

Night Out for Parkinson’s – East

GOLDEN VALLEY, Minn. – The National Parkinson Foundation Minnesota held its annual Night Out for Parkinson’s on Thursday evening at the Mendakota Country Club.

Over 70 people turned out for an evening that included dinner, silent auction and a chance to catch up with those involved in the Parkinson community. Dr. Okeanis Vaou served as the guest speaker for the evening, discussing pain associated with Parkinson’s and how to cope.

We would like to thank those who attended, along with our silent auction and raffle winners.

Be sure to check www.parkinsonmn.org for updates on all of our upcoming events.

 

 

 

 

 

2014 Night Out for Parkinson's East

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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The National Parkinson Foundation Minnesota (NPFM) is the Minnesota chapter of the National Parkinson Foundation (NPF). We are a local nonprofit raising awareness and funds for the Upper Midwest Parkinson’s community.  As a strong organization with a rich history, we are growing to enhance our leadership and community relationships, enable Parkinson’s providers to deliver more services and therapies, and to empower patients and families with Parkinson’s information and resources.

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Buck Joins NPFM Staff as Communications Specialist

The National Parkinson Foundation Minnesota (NPFM) has hired Rachel Buck to serve as the organization’s communications and marketing specialist. She begins her new role July 15.Rachel Buck Headshot

Buck brings to NPFM more than five years of professional experience in communications and public relations. Most recently, she served as the assistant director of athletic communications at the University of Wisconsin-Green Bay, managing communications efforts for six Division I sport programs. Buck performed the same role at George Mason University in Fairfax, Va., and also worked as a sports information assistant for two years at Washington and Lee University in Lexington, Va.

Her prior professional experience includes media relations, marketing and communications work, and event management for the Wisconsin State Fair. She is an active volunteer with Special Olympics.

Buck graduated from Marquette University with a bachelor’s degree in public relations and a minor in marketing, and earned her master’s degree at Georgetown University. A native of Merrill, Wis., Buck lives in Minneapolis with her fiancé, Dan.

 

St. Paul offers Parkinson’s-friendly class at Phalen Rec

Congratulations to the City of St. Paul Park and Rec Department and HealthEast Capistrant Center for working together to bring Parkinson’s-friendly classes to the Park and Rec calendar.

Starting July 9 the city is offering a Parkinson’s-friendly Tai Chi Chih class Wednesday mornings at Phalen Rec Center. More information and registration details are found here.

NPFM is working to highlight Parkinson’s-friendly exercise opportunities across the region. Do you have a favorite Parkinson’s-friendly exercise we should check out? Let us know at info@parkinsonmn.org.

People with Parkinson’s tell us– and research proves–movement is medicine. Movement is key to treating symptoms of Parkinson’s disease. NPFM’s Persons with Parkinson’s Advisory Board is working to identify Parkinson’s-friendly exercise classes and programs throughout the state. The list is growing!

Note: These programs are listed for information sharing only. Please consult your movement disorders specialist and care team before beginning any exercise program. Although the programs below have been identified as “Parkinson’s friendly” by people with Parkinson’s, they are not certified or approved by NPFM.

NPFM announces Wheeler as executive director

The National Parkinson Foundation Minnesota (NFPM) announced today David B. Wheeler will join NPFM as executive director David WheelerMay 1. Wheeler, a Duluth, Minn. native, brings to NPFM a strong background in nonprofit leadership, community engagement and public service. David Wheeler

“David’s passion for helping people live well is a cornerstone of his distinguished career,” said Eileen Smith, president of the NPFM Board of Directors. “The Parkinson’s community will certainly benefit from David’s leadership and service. His experience will guide NPFM as we continue to create Parkinson’s-friendly communities that support people as they live well with this chronic disease.”

David’s family has been personally touched by Parkinson’s disease, which provides the drive to make a real difference for those living with the illness.

As president of Wheeler Consultants, Wheeler worked with nonprofit organizations and churches to strengthen annual giving, conduct capital campaigns, develop strategic plans and new programming, increase outreach and raise public visibility. He served on the Duluth City Council for three and half years and was recently re-elected to Minneapolis Board of Estimate and Taxation, where he serves as President.

In the past, Wheeler worked with United Methodists for Marriage Equity, Minnesotans United, Draw the Line Minnesota Citizen Redistricting Commission, Community Involvement Programs and Alexandra House. He also served as lead minister of Brunswick United Methodist Church in Crystal, MN, and as Minister of Invitation at Hennepin Avenue United Methodist Church in Minneapolis, along with serving churches in rural, suburban and urban settings.

In addition to 30 years of involvement with Rotary, Wheeler has organized and led tours and mission groups to the United Kingdom, Palestine/Israel and Greece, Costa Rica, Russia, and India.

 

TPT’s Living With Parkinson’s: view entire video or segments online

If you missed the television premiere Sunday of Living With Parkinson’s on TPT, watch the entire show online. Choose to view the entire 26-minute video, or any one or all of these segments:

  • What is Parkinson’s?
  • Potential Causes
  • Symptoms and Diagnosis
  • Reaction to “The News”
  • Mental Health
  • The “Mask”
  • Exercise is Essential
  • Financial Challenges
  • Providing Care
  • Learning of Adversity

In addition, you may catch the rebroadcast Sunday, May 4, at 2 a.m., 10 a.m. and 2 p.m. on TPT-MN. It will also be broadcast 12:30 p.m., May 4, on TPT Life.

NPFM produced this documentary-like video with TPT to tell the stories of people living with Parkinson’s. We know that by sharing our stories chances are we will help others with Parkinson’s live well.

We welcome your questions and comments. NPFM is here to help. Would you like someone to share your with your group? Do you or someone you know need a break from caring for a loved one with the disease? Do you want to be the first to know about our upcoming help at home or exercise grants? Feel free to end an email to info@parkinsonmn.org or call 763-545-1272.

Below is where you may find TPT in your area.

 

Dish DirecTv around MN etc

 

 

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