Archive for the "NPFM News" Category

NPFM Accepts #PieItForward Challenge

 

Over 25,000 people are living with Parkinson’s in the state of Minnesota, the third-highest per-capita total in the United States.

Working alongside the National Parkinson Foundation, NPF Minnesota decided to help raise awareness and funds for Parkinson’s by participating in the #pieitforward campaign.

To kick off the campaign, executive director David Wheeler and past president Paul Blom accepted the challenge. Watch their video for inspiration and to see who they challenged, then join the effort by following the instructions below!

Want to do Whatever It Takes to Beat Parkinson’s?
To show your support for Parkinson’s? Here are the few easy steps.

1. All those challenged must take a whipped cream pie to the face.

2. When you complete your challenge, the person who challenged you must then donate to the cause. You may also challenge more individuals to participate and help spread awareness!

3. Be sure to share your videos on your favorite social media networks using #PieItForward – then send us the link to your video!

Donations can be made directly to NPFM to help our mission to raise awareness and provide outreach opportunities in the state of Minnesota. Please specify your donation as #pieitforward challenge when submitting.
DONATE NOW

Donations can also be made to our national office.

We look forward to seeing your best videos for a great cause, Minnesota!

Parkinson Friendly Communities Update

The National Parkinson Foundation Minnesota has been active across greater Minnesota, helping to create Parkinson Friendly Communities in Fargo, N.D., Alexandria and Willmar, and is beginning its efforts in St. Cloud and Mankato.

Through a generous grant from the Otto Bremer Foundation, NPFM has been working towards creating awareness about PD in a state that ranks third in the nation in Parkinson’s patients per capita.

Here’s a look at what NPFM has been up to this summer, and what the communities can look forward to in the upcoming months.

Fargo: NPFM hosted guest speaker Liz Ogren, founder of Pedal and Roll, for a community biking and informational session.

Willmar: NPFM paired with Liz Ogren for a two-day event, highlighted by a “Prospering with Parkinson’s” discussion on a Thursday evening followed by a Pedal and Roll event on Friday morning. Thursday evening, the PD community was encouraged to come together and get active to help alleviate symptoms of PD while having fun and learning how to incorporate even the smallest physical activities into everyday life. On Friday, participants had the opportunity to try out several adaptive bikes and experiment with nordic walking.

St. Cloud: An initial task force meeting was held in July with overwhelming support. NPFM is looking forward to attending more support group meetings, hosting a biking event and also hosting a guest speaker in the upcoming months.

Mankato: NPFM will be hosting its initial task force meeting on September 30. For more information please contact NPFM executive director David Wheeler at david@parkinsonmn.org or at 763.545.1272.

Parkinson Friendly Community: Willmar

The National Parkinson Foundation, through a generous grant from the Otto Bremmer Foundation, spent Thursday and Friday in Willmar encouraging the community to get active while learning about PD as a part of the Parkinson Friendly Community initiative.

A Thursday evening presentation about the benefits of exercise preceded a two-hour pedaling and Nordic walking event at Robbins Island. More than 20 individuals from the greater Willmar community turned out to get active and enjoy a beautiful Friday.

Thanks to Club Bethesda, Liz Ogren and Pedal and Roll and the Otto Bremmer Foundation for making the two-day event possible.

Star Tribune: Parkinson’s and depression

JackieNPFM was thrilled to connect Star Tribune reporter Jeremy Olson to local experts for today’s story about  Parkinson’s and depression.  Jackie Christensen, Liz Ogren, Dr. Martha Nance and Dr. Steven Stein are generous NPFM volunteers, helping people with PD live well.

While many people likely recognize tremors and difficulty walking as part of the illness, depression is one of many non-motor symptoms. Don’t wait to access the many education and support resources available locally. More than 25,000 Minnesotans live with Parkinson’s disease (PD), the third highest incidence per capita in the country. If you don’t find what you need on our website, please contact our office. We are here to help.

 

 

NPFM Clinical Advisory Board Statement Regarding Robin Williams

A message from Dr. Martha Nance, chair of the Clinical Advisory Board for the National Parkinson Foundation of Minnesota:

The Minnesota Parkinson’s disease medical community, like the rest if the country, is grieving the recent death of Robin Williams. Even more, we are saddened by the tragic manner if his death. Depression is common in people with Parkinson’s disease, but like many symptoms of the disease, it is often quite treatable.

Many people lead a rewarding and active life for many years after a diagnosis of Parkinson’s disease.  If you think you might have Parkinson’s disease, make an appointment with a Parkinson’s specialist to get an accurate diagnosis and appropriate treatment: Parkinson Disease Specialists.

And if you are depressed, uncertain, lost, or panicky after a diagnosis of Parkinson’s, or if the recent revelation about Robin Williams has sent you into a tailspin, call your primary care physician, your neurologist, or a mental health specialist for help. Let us hope that Mr. Williams’ tragic death will help others to live better.

Dr. Martha Nance, chair of the NPFM Clinical Advisory Board and medical director of the Struthers Parkinson's Center in Golden Valley, a NPF Center of Excellence.

Dr. Martha Nance, chair of the NPFM Clinical Advisory Board and medical director of the Struthers Parkinson’s Center in Golden Valley, a NPF Center of Excellence.

Willmar Pedal and Roll

Willmar Pedal and RollThe National Parkinson Foundation Minnesota (NPFM) is excited to work with Pedal and Roll for Parkinson’s for a two-day event in Willmar on August 21-22.

The event, hosted as a part of the NPFM Parkinson-Friendly Communities initiative through a grant from the Otto Bremer Foundation, will take place in the community on the evening of Thursday, August 21 and morning of Friday, August 22.

Thursday evening, Pedal and Roll founder and Parkinson patient Liz Ogren will speak to the community at Club Bethesda from 6:30-8 p.m. about living with a diagnosis and the benefits of exercise.

On Friday morning, the community will have an opportunity to put Liz’s exercise ideas into motion with a Pedal and Roll event at Robbins Island. From 10 a.m.-noon participants can ride their bikes around the island, or use one of the special adaptive bikes provided by Pedal and Roll to get out and get active. Participants are encouraged to bring their own helmets, and light snacks and beverages will be provided.

Informational poster: Willmar Pedal and Roll

***www.parkinsonmn.org***

Night Out for Parkinson’s – East

GOLDEN VALLEY, Minn. – The National Parkinson Foundation Minnesota held its annual Night Out for Parkinson’s on Thursday evening at the Mendakota Country Club.

Over 70 people turned out for an evening that included dinner, silent auction and a chance to catch up with those involved in the Parkinson community. Dr. Okeanis Vaou served as the guest speaker for the evening, discussing pain associated with Parkinson’s and how to cope.

We would like to thank those who attended, along with our silent auction and raffle winners.

Be sure to check www.parkinsonmn.org for updates on all of our upcoming events.

 

 

 

 

 

2014 Night Out for Parkinson's East

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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The National Parkinson Foundation Minnesota (NPFM) is the Minnesota chapter of the National Parkinson Foundation (NPF). We are a local nonprofit raising awareness and funds for the Upper Midwest Parkinson’s community.  As a strong organization with a rich history, we are growing to enhance our leadership and community relationships, enable Parkinson’s providers to deliver more services and therapies, and to empower patients and families with Parkinson’s information and resources.

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Buck Joins NPFM Staff as Communications Specialist

The National Parkinson Foundation Minnesota (NPFM) has hired Rachel Buck to serve as the organization’s communications and marketing specialist. She begins her new role July 15.Rachel Buck Headshot

Buck brings to NPFM more than five years of professional experience in communications and public relations. Most recently, she served as the assistant director of athletic communications at the University of Wisconsin-Green Bay, managing communications efforts for six Division I sport programs. Buck performed the same role at George Mason University in Fairfax, Va., and also worked as a sports information assistant for two years at Washington and Lee University in Lexington, Va.

Her prior professional experience includes media relations, marketing and communications work, and event management for the Wisconsin State Fair. She is an active volunteer with Special Olympics.

Buck graduated from Marquette University with a bachelor’s degree in public relations and a minor in marketing, and earned her master’s degree at Georgetown University. A native of Merrill, Wis., Buck lives in Minneapolis with her fiancé, Dan.

 

St. Paul offers Parkinson’s-friendly class at Phalen Rec

Congratulations to the City of St. Paul Park and Rec Department and HealthEast Capistrant Center for working together to bring Parkinson’s-friendly classes to the Park and Rec calendar.

Starting July 9 the city is offering a Parkinson’s-friendly Tai Chi Chih class Wednesday mornings at Phalen Rec Center. More information and registration details are found here.

NPFM is working to highlight Parkinson’s-friendly exercise opportunities across the region. Do you have a favorite Parkinson’s-friendly exercise we should check out? Let us know at info@parkinsonmn.org.

People with Parkinson’s tell us– and research proves–movement is medicine. Movement is key to treating symptoms of Parkinson’s disease. NPFM’s Persons with Parkinson’s Advisory Board is working to identify Parkinson’s-friendly exercise classes and programs throughout the state. The list is growing!

Note: These programs are listed for information sharing only. Please consult your movement disorders specialist and care team before beginning any exercise program. Although the programs below have been identified as “Parkinson’s friendly” by people with Parkinson’s, they are not certified or approved by NPFM.

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