Archive for the "Medical Corner" Category

Parkinson’s Support Grants

Here at NPFM we are very excited to offer three great opportunities for Parkinson’s patients and their caregivers. We truly believe that providing help and support for those living with Parkinson’s disease is the best way to raise awareness. After creating our first support grant and helping others, NPFM decided to evaluate the most prominent needs of people living with Parkinson’s and their families.

After doing our research and having conversations with people living with Parkinson’s, we added two more support grants to our program. Today, we have three support grants that each have a different focus. The first is a caregiver respite care grant, the second is a help-at-home grant, and the third is an exercise grant.

 

Wondering what each grant is all about? Here are some short descriptions:

— Caregiver respite care grant: This grant is for the live-in caregiver of a person with Parkinson’s or another related movement disorder living in Minnesota or one of its bordering U.S. states (North Dakota, South Dakota, Iowa and Wisconsin), allowing the caregiver a period of respite, or relief, from everyday responsibilities.

— Help-at-home grant: This grant is for a person with Parkinson’s or another related movement disorder living in Minnesota or one of its bordering U.S. states (North Dakota, South Dakota, Iowa and Wisconsin) to assist with general maintenance of a residential dwelling.

— Exercise grant: This grant is for a person with Parkinson’s or another related movement disorder living in Minnesota or one of its bordering U.S. states (North Dakota, South Dakota, Iowa and Wisconsin) to help the person with Parkinson’s get active through exercise programs.

 

Everyone at NPFM is continuously fundraising in order to support these grants and help as many people as possible. And the best part? We know that we can help.

“[The respite grant] was a gift for both [my husband] and I…I plan to continue encouraging caregivers to apply for the PAM grants that they can use for in-home care, adult day programs, or out-of home care. The respite break the grants provide are needed and deserved by caregivers.”

- Lorna Breiter

” We received the grant so that [my husband] could use the respite care services in The Kenwood Retirement Community…We both came home refreshed and told everyone about this terrific service. THANK YOU!”

- Vivian Jenkins Nelsen

“It is difficult to find the words to express the value to me of respite funding granted by the Parkinson Association of Minnesota…The freedom to hire a caregiver for the times I would like to attend meetings or meet with friends has given me flexibility i would not otherwise had…I would appreciate an opportunity to apply again.”

- Barbara Breckenridge

“We have the Parkinson Association to thank for the kind of support that enables mom and me to hope and plan…Thank you Parkinson Association of Minnesota for understanding how to best help Mom and me address our most pressing need. You’re great!”

- Don Piche

 

All of this great feedback from our grant recipients give us all of the motivation we need to continue fundraising and helping people with Parkinson’s. Here at NPFM we believe in support and we will do whatever it takes to be Parkinson’s Warriors.

Interested in receiving one of our grants for you or a loved one?

Individuals/families are welcome to apply for ONE of the three grants within a 12-month period. Applications will be accepted on a rolling basis until funds are exhausted, and will be handled in the order they are received by the NPFM office.

NPFM looks forward to working with the Parkinson’s community in issuing these grants. For more information, call the NPFM office at 763.545.1272 or e-mail barb@parkinsonmn.org.

VIDEO – Symptoms and Diagnosis

Continuing to explore the topic of symptoms and diagnosis, watch this short video which was part of our partnership with TPT in 2014.

All through the month of January we will continue to explore symptoms and diagnosis of PD, so keep checking back!

http://www.mnvideovault.org/index.php?id=26520&select_index=3&popup=yes#3

Parkinson’s Disease – Early symptoms and diagnosis

january MOAWith the start of 2015 NPFM is launching a new initiative, addressing issues surrounding Parkinson’s disease. The articles and videos used during the year-long campaign will open a conversation about the disease and its affects on individuals and families living with PD.

Each month will feature a new topic. If you have an issue you would like to see addressed, please contact our office.

For the month of January NPFM will focus on early symptoms and diagnosis.

We have two features this month: a video regarding the topic from our partnership with TPT in 2014 and a written piece from Dr. Martha Nance of the Struther’s Parkinson’s Center in Golden Valley.

VIDEO

http://www.mnvideovault.org/index.php?id=26520&select_index=3&popup=yes#3

EARLY SYMPTOMS AND DIAGNOSIS

By Dr. Martha Nance
The four “cardinal features” of Parkinson’s disease that lead doctors to make the diagnosis are:
Tremor
Slowness or smallness of movement
Stiffness of the limbs
Changes in posture, gait, and balance

An occasional person might use exactly these words to describe the symptoms that they have noticed, but some may use a variety of other words, or notice more specific or different symptoms.

“Tremor” refers to rhythmic, repetitive movements, often in the finger, hand, or arm, and often just on one side.  Some people may use the word “shaky” or “shakiness”.  Some people can make the tremor go away by clenching the fist or moving the hand to a different position.  The typical tremor of Parkinson’s disease is most noticeable at rest (a “resting tremor”) and improves or goes away with activity. Tremor can involve the chin or mouth or the leg, less often the trunk or neck.

“Slowness” and “smallness” of movements may manifest as slower walking, a shortening of the stride length (“shuffling gait”), or slowness doing usual activities like dressing or preparing meals.  Smallness of movements in the hands may lead to small handwriting, inaccuracy or slowness of keyboarding, sewing, playing the piano, or other hand activities that require a high degree of coordination.  If movements of the tongue and lips and throat are slow or small, the voice may become quiet, raspy, slurred, or stammering in nature.  Family members and friends may notice a lack of facial expression or slowed blink rate.

“Stiffness” may present as cramping, tightness, charley horses, or aching—often in the same limb or limbs that have tremor or smallness of movement.  The hand or arm may be held in a stiff posture when a person is walking.  It can be hard to separate the stiffness due to Parkinson’s disease from stiffness due to arthritis or other causes.  Stiffness occasionally results in pain.

Changes in posture and gait are often more noticeable to the viewer than to the person who has the problem.  Family members may repeatedly urge the person to “stand up straight” or “quit slouching” or “hurry up”.  A stooped or forward-leaning posture, shortened stride length or arm swing, and reduced confidence about a person’s balance are common.

In addition to these core symptoms, people with Parkinson’s disease may experience—or may have experienced—a host of other symptoms in the years leading up to the diagnosis of Parkinson’s disease.  Constipation, loss of sense of smell, changes in mood, and a variety of disturbances of sleep are common and may begin years (possibly decades!) before the motor symptoms start. Of course, there are many other causes of constipation, loss of smell, mood and sleep disturbance that have nothing to do with Parkinson’s disease.  Therefore, doctors do not make a diagnosis of Parkinson’s disease until the motor symptoms are present.

So, how does a doctor diagnose Parkinson’s disease?  Usually just by recognizing those core motor features.  The more of the features a person has, the more confident the doctor is about the diagnosis.  If only one or two features are present, the doctor may be reluctant to call it Parkinson’s disease.  If there are additional or atypical symptoms (prominent changes in thinking or memory right away, hallucinations, falling as an early symptom, and abrupt onset of symptoms are some atypical symptoms), the doctor may suspect a variant of Parkinson’s disease rather than the usual condition we described above.  If the doctor is unsure whether a person has Parkinson’s disease or not, he may ask the patient to return in a few weeks or months for a second neurological exam.

Researchers are working to develop a “test for Parkinson’s disease”, but that hasn’t quite happened yet.  The FDA has approved a kind of brain scan called a DAT Scan (different from a CT scan or MRI scan), which measures the availability of dopamine in the brain, but the test is expensive (and may not be covered by insurance), not necessary in clearcut cases of obvious Parkinson’s disease, and hard to interpret in cases that are unusual or atypical.  If your doctor has ordered a DAT scan, check to make sure your insurance will cover the cost of the test!

Depending on the situation, the doctor may order a regular brain imaging test (CT or MRI), to rule out other things that can cause symptoms similar to Parkinson’s disease, or do blood tests to look for other medical conditions that can cause stiffness, tremor, or pain.

For many years, doctors have said that “the best test for Parkinson’s disease is to see how well the person’s symptoms respond to levodopa.”  In a sense, taking a levodopa pill determines just about the same thing that a DAT scan measures—the need for more dopamine in the brain—but in a way that is often quite obvious to the person with Parkinson’s disease, the family, and the physician.  You should discuss with your doctor whether you should take levodopa, or any other Parkinson medication.

The time of diagnosis is a difficult time for a person with Parkinson’s disease.  If the diagnosis comes as a surprise, it is difficult.  If the diagnosis is slow in coming, or different doctors disagree about the diagnosis, that is equally difficult.  Make sure that your doctor has told you what you need to know about the diagnosis, any medications that you might receive, and any rehabilitation therapy that has been recommended.  Seek out accurate information, as available through the National Parkinson Foundation pamphlets and books.  And don’t be afraid to ask questions!  There is life after a diagnosis of Parkinson’s disease!

For more about Parkinson’s disease, early symptoms and useful information visit the national website: www.parkinson.org.

Struthers Receives HealthPartners Award

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The Struthers Parkinson’s Center, a National Parkinson Foundation (NPF) Center of Excellence located in Golden Valley, was recognized with the HealthPartners President’s Team Award Thursday evening in downtown Minneapolis.

The award is presented to teams within the HealthPartners network that go above and beyond to improve the health of members, patients and the community.

Struthers innovative model of care using a team-based approach, has been servicing the area since 1978, and has resided at its current location in Golden Valley since 1995. Struthers serves the needs of Parkinson’s patients and their families through comprehensive assessment, interdisciplinary treatment, support, research and education for both patients and care partners. The ultimate goal is to improve quality of life at every stage and help people live well with Parkinson’s disease.

For more information about Struthers and what it offers visit its website.

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